Dear TEAMability Supporter,
Claudia and I are the proud parents of three children: Sydni, Bryden and Katelyn. Bryden suffered a brain injury during birth and has a history of seizures. He has Cerebral Palsy and requires around the clock care. Although he is 5 years old, he cannot talk and does not walk or sit on his own.
Like any other family we experience challenges and get caught up with the ins and outs of daily life. Having a child with special needs and more specifically a severe disability or multiple disabilities adds another level of complexity to the equation.
It’s easy to become overwhelmed – doctor appointments, therapy sessions, support groups, labs, pharmacy visits, paperwork, insurance, the constant worry and the never ending search to find a better way to do therapy or feeding techniques, looking for the next genetic miracle, or medical breakthrough that might help. This can completely consume not only a person but also an entire family.
How do I make sure that our other children, Sydni and Katelyn, aren’t becoming forgotten and setting up a different set of problems? How do we keep the balance between the world I just described and keeping a sense of normal?
It takes an entire team and a pretty big one at that. Mom, dad, aunts, uncles, sisters, brothers, nurses, doctors, attendants, friends, Physical Therapists, Occupational Therapists, Speech therapists, teachers, case workers, Good Samaritans and strangers; all pitching in to help. I honestly don’t know where we would be today if we didn’t have this support network. Family making it a point to be available when needed. Nurses willing to work over night to allow a better night’s sleep. Doctors doing research or attending conferences to see if there are new technologies available. Attendants willing to take those other duties to help in any way possible.
TEAMability is a family too and shares some of the same needs as us. All of you are part of the family whether you work with TEAMability every day or someone who just wants to lend a helping hand. No role is too small and no role is insignificant. TEAMability helps bring peace of mind to families like us. The peace of mind that an organization exists and cares enough to be in it for the long haul and won’t abandon Bryden because he isn’t making progress fast enough. The peace of mind that I don’t have to worry if I can’t afford to pay. The peace of mind knowing they do understand and know how to help our son.
TEAMability can’t continue to do what it does alone. Just like our support network, you are part of TEAMability’s network too. You are a vital part to the continued success of this great organization. If you ever for once wondered what difference you have made, just take a look at Bryden and this family. Bryden is doing so much better than we could have ever dreamed. He is living proof of what can be done.
So how do we say thank you for what TEAMability does? No words can express our gratitude and thanks. We don’t take it for granted and see the difference the staff makes during every session at the center. The families of TEAMability’s children are stepping up and doing all they can. Part of our thanks is doing our fair share, doing therapy at home and not only on Tuesday and Thursday, showing up to appointments, ensuring we have the tools to help ourselves, and being an active part of the TEAMability family.
These kids are strong and determined. They have the will and yearn to achieve great things. No child should have to wait to take advantage of what TEAMability has to offer. Together we can make those dreams a reality.
So from our family to yours, thank you for all you do.
Joe and Claudia Acosta